Krispy Kreme Fundraiser! Great Team Wrap Around Event

Are you in need of a fundraising idea for your team and you LOVE Krispy Kreme Donuts?

Kripsy Kreme has four different ways you can rasie money. Click the link below and read more about them.

CLICK HERE

Publisher's Printing in Shepherdsville KY has partnered with CCFA

Louisville, KY  – January 26, 2011 – Publisher’s Printing in Shepherdsville, KY has partnered with CCFA in Kentucky as one of the sponsors for the Louisville Take Steps Walk on Saturday May 21, 2011 at 5pm at Waterfront Park’s Harbor Lawn. Like hundreds of thousands of other Americans around the country participating in over 100 Take Steps Walks, Publisher’s Printing is helping to raise much-needed awareness of and funds for Crohn’s disease and ulcerative colitis, chronic and painful digestive diseases impacting over 1.4 million American adults and children including over 19,000 in Kentucky.

MEET LOUISVILLE'S 2011 HONORED HERO

Ashley Bittenbender may be a shy and somewhat reserved teenager on the outside, but on the inside she is tough and a fighter. She has to be because she battles a debilitating disease known as Ulcerative Colitis.
After a year suffering from chronic symptoms, Ashley was diagnosed in August of 2010. “It can be hard,” said thirteen-year-old Ashley, “because the joint pain and the chronic fatigue get in my way. But in a way it also makes me stronger.” That is especially true when she’s doing the one thing she enjoys most – being the goal-keeper for a competitive girls traveling soccer team in Indiana.

“Ashley is very athletic,” said her mom Dr. Casey Bittenbender, “but when she got sick she was sidelined from the game and that was very hard on her. However, while she struggles daily with these issues she also accepts them and adjusts her life accordingly. She’s a trooper and uses her faith in God to get her through.”
Although Ashley considers herself your “average” girl, she excels in school and loves science and history. When she’s not studying or playing soccer, you can guarantee she’s listening to music. She is also an avid lover of animals, especially horses, and one day wants to be a veterinarian.

“Having UC is a serious pain. Fortunately I have been very blessed and have only had a few flares, others aren't so lucky. Lots of kids who have the same disease spend a lot of time in the hospital because their disease is really severe and their medication can't keep it under control. We desperately need a cure.”

How much Spirit have your got? Show it and be entered to win $20 towards your team!!!

How much Spirit have you got? Can you help raise Take Steps to the next level this year? Join us in our National Take Steps Spirit Week as we challenge every registered walker to raise a minimum of $30 on their personal fundraising page by January 16. And if you show us your spirit, we will show you ours by entering you in to win $20 towards your team.

If every registered walker raises $30 or donates $30 to themselves, we would have raised over $70,000 in just ONE WEEK to go to research efforts and support programs.

Check out our new Facebook page!

We are changing facebook pages for the 2011 Walk Season. Please "like" us at Take Steps Louisville (non-profit)

What are you Thankful for?

As we are approaching the Holiday season, we are asking everyone to share what they are thankful for.

We will start by saying that CCFA Kentucky is thankful for such a successful year and starting to build community presents with support from all our patients and volunteers.

Please click the city below and share with us on our facebook page

Lexington

Louisville

CCFA Testifies at Hearing- Thursday November 18, 2010

CCFA Testifies at Hearing:

Tomorrow morning Ally Bain, a CCFA advocate and National Youth Leadership Council member will be testifying in front of the Department of Justice (DOJ) on behalf of the Foundation. CCFA recently submitted comments to the (DOJ) requesting that IBD patients be allowed access to “employee only” restrooms under the Americans with Disabilities Act (ADA).

In addition to this hearing in Chicago, there will be two other hearings in DC and San Francisco.

To view the Press Release, Click Here.

Now Accepting Applications for The Leadership Board (Board of Directors)

We are currently accepting applications for the Leadership Board for Kentucky as we develop a Chapter for CCFA.

For more information about the positions avaialble and an application

Please contact Jenny Silberisen

(646) 623-2620

jsilberisen@ccfa.org



Nominate Lexington's and Louisville's next 2011 Honored Hero

Nominate the 2011 Honored Hero



Nominate the next 2011 Honored Hero for our Lexington and Louisville 2011 Take Steps. The Honored Hero puts a face on digestive diseases for the 2011 year. The Honored Hero works with the Crohn's and Colitis staff to reach out to the community via media outlets and events. The Honored Hero will attend the Kick Off Party and Walk Day and will speak on behalf of CCFA as the Honored Hero on Walk Day. They will also have their picture and a brief bio placed on the website and used as a marketing tool possibly placed in print media. The Honored Hero will be required to have a Walk Team.

Please type in a Word Document 300 words or less why you think your nominee should be our next Honored Hero. Please use the font Times New Roman in size 12 font and attach a photo of your nominee. Please indicate what city you are nominating for.

All nominations must be received via email (jsilberisen@ccfa.org) or mail (P.O. Box 573 Prospect, KY 40059) by November 30, 2010

Requirements for Nominee's: Individual must be affected with a digestive disease and must be between the age of 13- 18

Louisville Join Jenny Monday November 1st

Join Jenny on Monday November 1st

at the Bon Air Library

6:30PM- 7:30PM

Learn about getting involved in Take Steps 2011

Learn your committee & who you'll be working with if you already joined

Learn about starting and managing a Team

Learn about different ways to fundraise

LOOK FORWARD TO SEEING EVERYONE!

For more information contact Jenny Silberisen Community Development Manager (646) 623-2620

jsilberisen@ccfa.org

Bon Air Library is located at 2816 Del Rio Pl Louisville 40220

Don't miss this fun and exciting event in Louisville!

COMING TO LEXINGTON!!!!!

Wednesday November 10, 2010

Embassy Suites Lexington Hotel

Guest Speaker: Dr. Willem de Villiers, University of Kentucky

5:30pm, Check - in

6:00pm-8:00pm, Program

 Embassy Suite Lexington Hotel is located at 1801 Newtown Pike Lexington, KY 40511

 -----------------------------

Registration is required

Register Online

Call (646) 623-2620

Email Jenny Silberisen at  jsilberisen@ccfa.org 
 -----------------------------

Sponsored by

Centocor and Shire

Register Now! Understanding IBD in Louisville

 

Tuesday, September 28, 2010

Jewish Community Center of Louisville

Guest Speaker: Dr. Gerald Dryden, University of Louisville

5:15pm, Check - in

6:00pm-8:00pm, Program

 Jewish Community Center of Louisville is located at 3600 Dutchmans Lane Louisville KY 40205

 -----------------------------

Registration is required

Register Online

Call (646) 623-2620

Email Jenny Silberisen at  jsilberisen@ccfa.org 
 -----------------------------

Sponsored by 

Lexington Mark Your Calendar's....Join Us for Dining to Donate!

YOU MUST PRESENT THIS FLYER WITH YOUR RECEIPT IN ORDER FOR US TO GET CREDIT!

Please Print this Flyer. If you are having trouble, contact Jenny Silberisen 646-623-2620 or jsilberisen@ccfa.org

The ABCs of IBS

I came across this article and found it very interesting and wanted to share. Click the link below and scroll down about half way through the website.

Click Here to Read "The ABCs of IBS"

Photos from Lexington!

Enjoy all the wonderful photos from our Lexington Walk May 22nd.

Lexington Walk Day Photos May 22, 2010

From one of our own, Kevin Gibson!

Kevin Gibson hate's his own guts and anyone with Crohn's and Colitis completely understands and relates to his sense of humor as he shares how he handles life's unexpected surprises.
http://leoweekly.com/guest-commentary/why-i-hate-my-own-guts

Come out for a fun Friday Night ........"Comedy for Crohns"

Comedy for Crohns

Friday, June 25th,
Doors open at 6:15, show starts at 7:15 p.m.

 Featuring
Spanky Brown and Gabe Kea

$20 per person
Or
$30 per couple

Tickets MUST be purchased at the River City FOP
968-0117
Proceeds benefit the Crohns & Colitis Foundation
In support of Louisville’s Honored Hero, Nick
Winters

Congrats to Louisville for a successful FIRST Take Steps June 5th

Thank you for making Louisville's First Walk a HUGE Success, raising over $50,000 to date! Congrats!

Congrats to Lexington for a successful FIRST Take Steps May 22nd

Thank you to everyone that came out and supports Lexington's First Take Steps Fundraising Walk which benefits the Crohn's and Colitis Foundation.