Wednesday, May 19, 2010

Happy World IBD Day!

We are coming together as a Community to raise awareness about IBD! 

An international community of IBD patient groups will join thousands of gastroenterologists from around the world to launch the first "World IBD Day" -- dedicated to Crohn's disease and ulcerative colitis awareness. This event is led by patient organizations representing 27 countries on four continents. Patient groups from the United States, Canada, Australia, 23 European nations, and Brazil are working in collaboration with the World Gastroenterology Organization (WGO) to draw awareness to inflammatory bowel diseases. Learn more about World IBD Day http://ibdday.bvsalud.org

Have you done you part today to spread the word about Crohn's and Colitis?
* Fundraise on Facebook, by downloading the Boundless Fundraising Application 
* Email all your contacts about World IBD Day
* Post the IBD Picture on your facebook and my space account

Tuesday, May 18, 2010

Meet Louisville's Honored Hero Sunday May 23rd


Join the Crohn's and Colitis Foundation for a 
Pankcake Breakfast & Meet Louisville's Honored Hero
Nick Winters
All you can eat pancakes $5 (add sausage, just $1) 

River City FOP 614
6204 Price Lane
Louisville, KY  40229
All proceeds benefit the Team of Nick Winters Walkers for the Crohn’s & Colitis Foundation, Take Steps Walk Saturday June 5th


For more information contact Jenny Silberisen
(646) 623-2620
jsilberisen@ccfa.org

Wednesday, May 12, 2010

Two Fundraising Events for Lexington- Saturday May 15th

We haev two events in Frankfort and Lexington this weekend, Saturday May 15th and would love to see everyone out there.



***Saturday May 15th at Macadoos in Frankfort (610 Ridgeview Dr Frankfort KY) ***

* Lots of Food & Drink Specials Kitchen Hours 11am-9pm Bar Hours 10p-1am
* Free... Car Wash 11am- 2pm Donations will be Accepted

* Cornhole Tournament 2pm

              $20 per team minimum1 pro per team
                 1st place two $100 Gift Cards to Resturants.com
                 2nd place two $50 gift cards

There will also be drawings for $25 gift cards (from local businesses) for anyone that pre-registers and pre-pays for $25 gift cards from local businesses




****Saturday May 15th at Natasha’s Bistro & Bar (112 Esplanade Alley) ****
                                               5pm until Close
We will be raising awareness about Crohn’s & Colitis, and our FIRST Take Steps Walk in Lexington

Monday, May 3, 2010

Team "The Irritables" Says It All!

The name says it all; it expresses so often how our body feels! In the mornings we awake with this disease that has no cure and often times we feel helpless and even hopeless. Many of us feel alone in our suffering-our family and friends can’t really relate and sometimes they simply don’t understand the extent of our pain. I personally have battled Crohn’s since 2003 and the past 7 years have been full of difficult challenges (tests, drugs, surgeries, sickness and the expense of toilet paper). However, this time has also been filled with many wonderful moments (a new job/career, family closeness, courage, faith, and getting married). Crohn’s has changed my life in a monumental way, but it hasn’t and it will not keep me from living out all of my hopes and dreams!


At the first of April when I became aware of the “Take Steps Walk,” I knew immediately I wanted to participate. My husband was the first to tell me about this great opportunity to raise money for research and more importantly get the word out about Crohn’s and Colitis. We began our search for the perfect name for our team. We wanted it to be creative but also clean (this is kind of hard when dealing with a digestive disease). Due to our lack of creativity, we enlisted the help of our friends and family. Our first contact was my very smart and creative Uncle Mark; within a few hours he had a list of 5-6 names. “The Irritables” jumped out at us immediately.

Now we had a team name, what do we do next? I began to work on our team’s website and inviting as many friends and family members to partner with me. I decided to set my personal goal at $500, but soon realized I needed to raise that goal. Asking for donations from family or friends just doesn’t come easy to me. However, due to many generous people I have already raised approximately $1500 and our team has raised around $1630. Most of our donations have come from our loving family and close friends. As we move closer to the date of the walk we begin to think of new ways of raising funds for research. It is our hope that as we begin to ask new people to give we will be encouraged by their response and support.

My primary goal for participating in the walk is to join with others who can relate to the many challenges we face on a daily basis. I am excited for the day of the walk to come and I hope every day for a cure!